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Landon

http://les2de.bb4free.com

10.10.2006 kl. 21:02

CONGRATULATIONS! hPTH will be available for ALL of us!

All the HPTH patients in the Nordic area of Europe are sending you and Dr.Marlene Haffner, director of Orphan Drugs at FDA our greatest respect and gratitude. The NPS drug company is going to produce and develop hPTH 1-84 for HPTH patients thanks to your wonderful work. This is the greatest breakthrough in the treatment of our desease since the years after 1930 when D vitamin treatment was introdused.Hypoparathyroidism was the last Endocrinologic insuffiency disorder in the world who did not get the missing hormone as treatment. So this should be written in the medical history books!!
Thanks so very much!
Helle Jensen
Nordic HPTH Organisation.

Helle Jensen

www.hpth.no

10.10.2006 kl. 17:49

happy to meet you

THANK YOU FOR PAVING THE WAY FOR ALL OF US..........I ENJOYED MEETING YOU AND ALL OF THE INFORMATION AND INSIGHT YOU PROVIDED

ashley morgan randolph

11.7.2006 kl. 2:39

Because of You

Because of you, and hearing your story, and attending the conference in Maryland in April 2006, I have been tentatively accepted as a patient to begin PTH 184 as part of Columbia Universities Research Study on PTH 184 and the effects of Hypoparathyoidism on the skeletal system. My first injection of PTH 184 is August 10, 2006.
Thank you for all that you have done to bring awareness to this disease.

Michelle
therunner@sbcglobal.net

Michelle Devine-Agricola

31.5.2006 kl. 20:11

Hope to see you in Norway!

It was such a wonderfull surprise that you maybe have the possibility to attend on our meeting in Norway the 20 july. It will mean a lot meeting you and having the possibility to focus on Forsteo.
Congratulations on your new web site. I admire all the work you are doing to make a better life for all patients with hPTH.
Helle Jensen
8 years hPTH.
The norwegian branch of Hypoparathyridism.

Helle Jensen

www.hpth.no

30.5.2006 kl. 1:04

Just saying Hello

I am sorry I did not get to go to the conferance and meet you and all the others there. As you know I am having my regional meeting in June in Indiana. James is coming and bringing your movie. So everyone here will get to know you.
Take care and God Bless
Phyllis with surgical HPTH for 32 years.

Phyllis

www.inchapterpb.com

27.5.2006 kl. 7:56

Vi syns i Norge

Jättekul att ni kommer till den norska föreningens årsmöte. Vi syns där!
lena

lena israelsson

18.5.2006 kl. 22:44

Thank you seems inadequate

There aren't words to convey how grateful I am that you asked your Mother to have an international conference on hypoparathyroidism. This is the start to a better life for all of us who have this illness. You and your family are lovely and I'm so happy I finally got to meet you. Thank you from the bottom of my heart.

Love,
Linda (grammyDx2)

Linda

15.5.2006 kl. 0:06

Thank you for having the conference.

I really can't tell you what it meant. I'm not sure I have the right words. Thanks to meeting you and hearing your story. I will soon be adding mine.
I will to be taking part in the study.
Your family was so kind. So neat to have met you. My mom said your story was so much like mine. Except I didn't have the grand mal seizures.

Bridgett

27.4.2006 kl. 19:17

Thank you for being brave for all of us. you are an inpiration to us all

I want to thank you from the buttom of my heart for being the wonderfull family that you are, for being inovative and brave, and by opening your life to us giving us hope and leading the way for for a better future for all of us.

love,

Avi

Avi Sagiv-Z

17.4.2006 kl. 21:47

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